A donation of € 3,000
Rett syndrome is a rare neurological disorder that almost exclusively affects girls. The symptoms, behavioural and developmental regression, tend to appear when the girl is between six and eighteen months old. Rett syndrome results in severe mental and physical disabilities and total dependence on third parties. Rett Syndrome Europe ASBL (RSE) is a non-profit organisation supporting a network of national associations, among others by creating awareness for this rare disease and by supporting and promoting research into the different aspects of Rett syndrome.
In 2017, RSE would very much like to publish a book written by the best experts in Europe about every single aspect of Rett syndrome (epilepsy, spasticity, scoliosis, respiratory disorders, constipation, swallowing difficulties, osteoporosis...). The book will be published in several languages and is meant to serve as a guideline for the many families that suffer from this disease. The support of the Alpro Social Fund will be used for the Dutch translation of the book.